S09: ORAL PRESENTATIONS - Exploring Co-Design as an Essential Tool for Research & Evaluation
Nicholls Theatrette
Wednesday, August 28, 2024 |
11:30 AM - 1:00 PM |
Nicholls Theatrette |
Author/Presenters
Grenville Rose
Research Fellow
Australian National University
Presenting
Bridget Berry
Presenting
Presenting
Deputy Chair
Consumer Led Research Network
Michelle Banfield
Professor
Australian National University
Partnerships between a consumer led research network and a large mental health research organisation.
Abstract
This paper presents a case study review of the partnership between the Consumer Led Research Network in New South Wales, Australia an independent mental health lived experience led research network and the Brain and Mind Centre at The University of Sydney. The aim of this paper is to present a framework for improving future similar partnerships between established research organisations and consumer research partnerships and to improve understandings of established researchers working collaboratively with consumer researchers. We aim to make a contribution to the overall discipline of lived experience involvement in mental health research, and to act as an exemplar of many of the principles and practical requirements needed for a successful partnership that promotes inclusive research practices and power sharing. This paper explores the challenges encountered in a case study which aimed at, but did not succeed, in promoting and using inclusive mental health research practices between a consumer research group and a large established mental health research organisation. This paper is the result of an independent mixed methods review of the collaboration which aimed to provide a path forward for established research to work more effectively with consumer led research groups.
Michelle Banfield
Professor
Australian National University
Presenting
Melanie Giugni
Presenting
Presenting
Research Officer
Australian National University
Alyssa Morse
Presenting
Presenting
Research Fellow
The Australian National University
Co-designed Outcomes for Guests: Enhancing meaningful evaluation using the COGwheel
Abstract
The involvement of service users, clinicians, and other health service end–users has become recognised as a valuable and essential part of health research. In addition to healthcare quality improvements, co‐designed research has been shown to benefit researchers, service users, family/caregivers and practitioners. This presentation details the co-design, development and implementation of the digitised Co-designed Outcomes for Guests (COGwheel), a brief data collection instrument aimed at evaluating guests’ experiences of peer-led, non-clinical ‘safe spaces’ for those experiencing emotional distress and/or suicidal crisis. We describe how the co-design process contributed to the development of a visually appealing, creative, user-friendly and strengths-focused digital instrument for gathering information on important safe space outcomes. The instrument has been well-received in the project by safe space staff and guests, providing a valuable instrument for quantifying an individual’s felt experiences. Despite the rigorous co-design process, some challenges remain, for example with regard to the relevance of some outcome measures for culturally diverse populations, and we will conclude our presentation with a discussion of these.
Nicola Hancock
Professor
The University of Sydney
Presenting
Honey Anne
Associate Professor
The University of Sydney
Justin Scanlan
Associate Professor
The University of Sydney
Andrew Povolny
Presenting
Presenting
Researcher
The University of Sydney
Helen Glover
Consultant
enLightened Consultants
Naseem Ahmadpour
Associate Professor
The University of Sydney
Cao Yidan
Research assistant
The University of Sydney
Michael Wren
Presenting
Presenting
Research Advisory Council
Flourish Australia
Co-design – the research process of ‘finding common ground’: learning what works
Abstract
Participatory approaches in research are adopted to ensure that common ground is found and the perspectives and priorities of participants are paramount. Increasingly mental health research adopts participatory approaches, but little research has been done to evaluate the experiences of those engaged in participatory approaches.
The aim of this presentation is to describe a series of labs run with co-designers with their own lived experience of mental health recovery and working to support people in that journey. This project involved co-designing and building an App called DRIVing my own mental health Recovery (DRIV-R) to support service users and workers to gain a shared understanding of the service users recovery priorities.
Both survey and in-depth interview data from 19 co-designers were thematically analysed. Findings highlighted the experiences and activities that enhanced co-designer opportunities to exert influence and impact and to feel safe to debate and share their perspectives. Recommendations to further enhance the comfort, power and influence of co-designers were also captured. These findings will support future mental health researchers and practitioners to critique their approaches and to extend the ‘co’ in their co-design activities.
The aim of this presentation is to describe a series of labs run with co-designers with their own lived experience of mental health recovery and working to support people in that journey. This project involved co-designing and building an App called DRIVing my own mental health Recovery (DRIV-R) to support service users and workers to gain a shared understanding of the service users recovery priorities.
Both survey and in-depth interview data from 19 co-designers were thematically analysed. Findings highlighted the experiences and activities that enhanced co-designer opportunities to exert influence and impact and to feel safe to debate and share their perspectives. Recommendations to further enhance the comfort, power and influence of co-designers were also captured. These findings will support future mental health researchers and practitioners to critique their approaches and to extend the ‘co’ in their co-design activities.
Michelle Banfield
Professor
Australian National University
Presenting
Who is the mad one here? Lived Experience Research challenging the way it's always done
Abstract
The old saying goes that insanity is doing the same thing over and over and expecting a different result. Doing the same thing over could be also be said of much traditional research, and our mental health system, so who is the mad one here?
This presentation will explore my experiences over 20 years as a Lived Experience Researcher, working with Lived Experience communities to challenge the idea that quality and rigour come from doings things the same way, because "that's how we've always done it." We are at a critical point for genuinely centring Lived Experience, but if we are to truly shift mental health research and the system, then some radical changes are needed in structures and processes. I will take a deep dive on some of these, such as research ethics and research funding, to point the way for our future collective efforts.
This presentation will explore my experiences over 20 years as a Lived Experience Researcher, working with Lived Experience communities to challenge the idea that quality and rigour come from doings things the same way, because "that's how we've always done it." We are at a critical point for genuinely centring Lived Experience, but if we are to truly shift mental health research and the system, then some radical changes are needed in structures and processes. I will take a deep dive on some of these, such as research ethics and research funding, to point the way for our future collective efforts.
Eileen McDonald
Lived Experience Research Partner
MAGNET
Presenting
Clare Walton
Presenting
Presenting
Lived Experience Research Associate
University Of Melbourne
Cassandra Heffernan
Chair, MAGNET Lived Experience Research Partners Platform Committee
Lived Experience Research Officer, ANU
James McLure
Lived Experience Research Partner
Deakin University
Caity Mac
Lab Coordinator, School of Health Sciences
Swinburne University
Sophie Richards
Lived Experience Research Partner
Swinburne University
Clinton Schultz
Director, First Nations Strategy and Partnerships, Head of First Nations Research
Black Dog Institute
Preet Kaur
MAGNET Platforms Manager
Swinburne University
Susan Rossell
Professor
Swinburne University
Ayla Baratchu
MAGNET Executive Officer
Deakin University
Christopher Davey
Professor, Head of Dept. Psychiatry
The University of Melbourne
Michael Berk
Alfred Deakin Professor, Director, Institute for Mental and Physical Health and Clinical Translation (IMPACT)
Deakin University
Philip Batterham
Professor
The Australian National University
Angela Markus
Secretariat and Communcations Coordinator
Mental Health Australia General Clinical Trials Network (MAGNET)
Adrienne O’Neil
Professor
Deakin University
Finding Common Ground with Mental Health Clinical Trials
Abstract
Mental health clinical trials can improve understanding, facilitate the development of treatment options, inform public policies related to mental health, and improve the quality of life for individuals with mental health conditions and their families.
This presentation will provide the why, who and how of the Mental Health Australia General Clinical Trials Network (MAGNET). Focused on adult mental health, MAGNET has been finding the common ground, with over 100 researchers and organisations celebrating diversity and differences in perspectives.
Important unmet mental health clinical research needs are addressed through MAGNET’s shared resources via central platforms and conducting definitive trials across diverse disorders and types of interventions, including co-design and engagement with MAGNET’s Lived Experience Research Partners (LERPs) and First Nations Wellness and Governance Group (FNWGG).
This presentation will describe the opportunities for lived experience involvement in the MAGNET clinical trials network, which is designed to translate evidence into better outcomes for prevention, diagnosis, interventions and recovery.
MAGNET is looking beyond through embedding collaboration with First Nations and Lived Experience as research partners to unify and improve mental health clinical trial research and translation.
This presentation will provide the why, who and how of the Mental Health Australia General Clinical Trials Network (MAGNET). Focused on adult mental health, MAGNET has been finding the common ground, with over 100 researchers and organisations celebrating diversity and differences in perspectives.
Important unmet mental health clinical research needs are addressed through MAGNET’s shared resources via central platforms and conducting definitive trials across diverse disorders and types of interventions, including co-design and engagement with MAGNET’s Lived Experience Research Partners (LERPs) and First Nations Wellness and Governance Group (FNWGG).
This presentation will describe the opportunities for lived experience involvement in the MAGNET clinical trials network, which is designed to translate evidence into better outcomes for prevention, diagnosis, interventions and recovery.
MAGNET is looking beyond through embedding collaboration with First Nations and Lived Experience as research partners to unify and improve mental health clinical trial research and translation.
Chairperson
Anna Scheepers
Lived Experience Lead
Neami National
