S046: Snapshots - Experiences of Recovery
Tracks
Track 9
Thursday, August 27, 2015 |
10:30 AM - 12:30 PM |
Fitzroy Room |
Speaker
Douglas Holmes
Partner
Consumer Audit Tool Consulting
Hearing Voices in NSW
Abstract
This paper outlines the process that a group of committed people in NSW have gone through in the last 7 years to promote the Hearing Voice Approach in NSW. In 2008 a public meeting was organised at St Vincent Hospital to see what interest there was in the Hearing Voices approach. Both Arana Pearson and Ron Coleman had done a number of workshops during the previous 5 years. Sixteen people attended the meeting and from that start several people committed to meeting monthly to progress the concept. In 2011 we now have an independent and viable incorporated association called Hearing Voices Network NSW, 22 Hearing Voices groups across NSW, a carers group and a training workshop for aspiring group facilitators.
The management committees primary focus has been to establish due diligence in setting up the hearing voices groups and as a result of this each group that is establish under the HVN NSW umbrella is supplied with a start up kit that includes: • Self Help Groups User Manual • Group Locations & Contacts • Guidelines to Coping with Distressing Voices • Strategies for Coping • Hearing Voices Group Guidelines • Books More information about HVN NSW can be found at www.hvnnsw.org.au
The management committees primary focus has been to establish due diligence in setting up the hearing voices groups and as a result of this each group that is establish under the HVN NSW umbrella is supplied with a start up kit that includes: • Self Help Groups User Manual • Group Locations & Contacts • Guidelines to Coping with Distressing Voices • Strategies for Coping • Hearing Voices Group Guidelines • Books More information about HVN NSW can be found at www.hvnnsw.org.au
Biography
Douglas Holmes is a consumer who works full time at St Vincents Hospital as the Consumer Participation Oficer
Mary Ward
Consumer Advisor
Western Australian Mental Health Commission
My experience of stigma and the known strategies that led to reduction and ceasation are analysed and proposed as potential solutions to reduce stigma as currently experienced by the mentally ill.
Abstract
Mental health articles analyse stigma’s impact on mental health patients and offer solutions but real action is often hampered by funding, commitment and in Australia, extreme distance. Major mental health programmes have been introduced in some countries and these are briefly described. Types of stigma including self-stigma and some relevant laws are discussed. Corrigan’s work clearly describes how mentally ill are robbed of opportunities including jobs, accommodation and valuable social life. Justice issues are discussed such as numerous patients in mental health hospitals could be discharged but suitable accommodation is not available.
Overwhelming research demonstrates the power of the personal story and face to face contact but the mentally ill are often unable to speak out for themselves. I endured discrimination as a teenager for very visible scars. Society’s fear and avoidance of mental illness is enhanced because of uncertainty and misunderstanding. My experience is that community attitudes can be changed and details of how and why will be provided. Change is needed especially from the community. Organizations including Government and non-government and funding alone cannot provide the all-encompassing care mentally ill people need to overcome the many challenges including stigma they face.
Overwhelming research demonstrates the power of the personal story and face to face contact but the mentally ill are often unable to speak out for themselves. I endured discrimination as a teenager for very visible scars. Society’s fear and avoidance of mental illness is enhanced because of uncertainty and misunderstanding. My experience is that community attitudes can be changed and details of how and why will be provided. Change is needed especially from the community. Organizations including Government and non-government and funding alone cannot provide the all-encompassing care mentally ill people need to overcome the many challenges including stigma they face.
Biography
Burnt when 13, shortly following migration from UK. Spent many months in hospital. Educated began via adult education Graduated with Library Degree, Computing and teaching Grad Dip’s.
Teacher 10 years until PTSD occurred, significant physical conditions developed. Current member as consumer and Mental Health representative in CAG and CAC Groups.
Tracey Myles
Consumer Consultant
Department of Health NT
I'm Qualified in Being Psychotic - gaining respect whilst maintaining your dignity
Abstract
The inclusion and employment of people with lived experience is increasingly being seen as best practice in our mental health services. In June 2014 the Top End Mental Health Service created the role of Consumer Consultant. The role required a number of skills; the most important being the lived experience of mental illness but from there it was was very similar to the road to recovery - completely uncharted.
Reflecting on the first year within the service has been an interesting process. It is vital to maintain trusted relationships as a peer to those living with mental illness, to provide them with advocacy and ensure their needs are being noted at all levels. It is also essential to create respect and acceptance of your experience as a professional in your field.
The sharing of experiences is beneficial for the entire workforce. Those who are in lived experience roles often benefit from hearing the thoughts of others to help clarify their own thoughts and expectations. Our clinicians can learn from the understanding of what we are thinking and why. It is my intention to share these reflections to hopefully assist others on their path which ever it may be.
Reflecting on the first year within the service has been an interesting process. It is vital to maintain trusted relationships as a peer to those living with mental illness, to provide them with advocacy and ensure their needs are being noted at all levels. It is also essential to create respect and acceptance of your experience as a professional in your field.
The sharing of experiences is beneficial for the entire workforce. Those who are in lived experience roles often benefit from hearing the thoughts of others to help clarify their own thoughts and expectations. Our clinicians can learn from the understanding of what we are thinking and why. It is my intention to share these reflections to hopefully assist others on their path which ever it may be.
Biography
Mother of 3, carer of 2 and bipolar Tracey is also a lived experience worker for the Top End Mental Health Service in the NT.
Bronwyn Howlett
Program Manager
WentWest
Consumer experiences of Partners In Recovery in Western Sydney
Abstract
A survey of the consumers experience of Partners In Recovery (PIR) in Western Sydney was conducted by the Consumer Consultant employed in the program. The survey asked consumers to rate the program across a number of questions that related to their experiences of the staff and the program such as "I was treated with dignity and respect". As well as their own experience of recovery through questions such as "PIR has given me hope" and "I feel more socially connected".
The results of the survey will be used to look at the effectiveness of the program and the competencies that staff are required to have to provide a recovery oriented service from the consumers experience.
The results of the survey will be used to look at the effectiveness of the program and the competencies that staff are required to have to provide a recovery oriented service from the consumers experience.
Biography
Bronwyn Howlett is currently the Program Manager for Partners in Recovery In Western Sydney. She has extensive experience in working with consumers from a recovery framework in both the government and community sectors.
Allison Kokany is the Consumer consultant at Western Sydney Partners in Recovery and is the NSW consumer representative on the National Mental Health Consumer and Carer Forum. She is extremely passionate about ensuring that services are recovery oriented and the consumer experience is reflected in systems change.
Louise Byrne
Academic
CQUniversity
Recovery, a lived experience discipline
Abstract
Government policy clearly insists on Recovery orientation as the future direction for mental health service provision within Australia. However, many mental health organisations and professionals are struggling to understand and meaningfully implement Recovery within the pre-existing system. Education and change management has been sporadic and ad hoc. People employed to work specifically from their lived experience of mental health challenge, service use and Recovery provide invaluable understanding and potential philosophical leadership to the ongoing implementation of Recovery concepts and practice.
Biography
Dr Louise Byrne works from the perspective of her own experience of significant mental health challenges, service use and Recovery. For 15 years Louise experienced hospitalisation and periods of debilitating mental unwellness, before becoming a lived experience practitioner. Her current position is at CQUniversity, Australia where she is employed as a fulltime lived experience in mental health academic.
Sara McCook Weir
O'Hagan and McCook Weir Consulting Ltd
PeerZone by numbers
Abstract
PeerZone is a series of three hour peer led workshops in mental health and addiction where people explore recovery and whole of life wellbeing.
Since its inception in 2013, PeerZone has oriented over 100 facilitators in Australia and New Zealand who deliver workshops for their organisations and communities.
Using a statistical and colourful PowerPoint presentation this paper outlines PeerZone’s successes from its first orientation of facilitators in Canberra in 2013, through its growth in Australia and New Zealand to its franchise in Toronto, Ontario this year.
In a snappy, colourful display this paper shows how PeerZone has supported the peer workforce, their organisations and services users alike through the facilitation of a powerful shared learning experience.
Since its inception in 2013, PeerZone has oriented over 100 facilitators in Australia and New Zealand who deliver workshops for their organisations and communities.
Using a statistical and colourful PowerPoint presentation this paper outlines PeerZone’s successes from its first orientation of facilitators in Canberra in 2013, through its growth in Australia and New Zealand to its franchise in Toronto, Ontario this year.
In a snappy, colourful display this paper shows how PeerZone has supported the peer workforce, their organisations and services users alike through the facilitation of a powerful shared learning experience.
Biography
Sara has been a trainer, peer educator and creative deviser in the mental health arena for the last 20 years. In 2009 she joined Mary O'Hagan to work on a variety of projects and she became involved with PeerZone in its early stages of development. As principal facilitator of PeerZone Sara has delivered orientations around New Zealand as well as in Canberra, Sydney, Melbourne, Brisbane, Townsville and Perth. PeerZone was launched in Toronto, Ontario this spring.
Lynda Hennessy
ConsumerConsultant
Eastern Sydney Partners in Recovery
My Journey to becoming a Consumer Consultant for Eastern Sydney Partners in Recovery (ESPIR)
Abstract
My journey began in 1997 when I attended my first THEMHS Conference. I have attended THEMHS every year since then, in my different roles of consumer work I have been supported with costs to attend. I am now the Consumer Consultant for the Eastern Sydney Partners in Recovery. Part of my role is to organise the ESPIR Consumer Network Meetings, this is a network of consumers in the Eastern Sydney area who are interested in supporting ESPIR so that consumers can receive a better service.
I have had regular meetings to find out what are the local issues important to consumers. The main issue identified was stigma. In Eastern Sydney we have a range of stigma busting activities happening to address stigma: The Team Marbles Challenge, SUPER Group, and Film Workshops.
This year I am inviting the clients of ESPIR for an informal chat to meet me and other consumers. The forum is to find out if they needed help in the Eastern Sydney area but couldn’t find it in the Eastern Sydney Area, and to talk about what else would have been helpful.
My journey has been a long one, full of different experiences, all with the aim to change the mental health service and help other consumers have a better recovery journey than I had.
I have had regular meetings to find out what are the local issues important to consumers. The main issue identified was stigma. In Eastern Sydney we have a range of stigma busting activities happening to address stigma: The Team Marbles Challenge, SUPER Group, and Film Workshops.
This year I am inviting the clients of ESPIR for an informal chat to meet me and other consumers. The forum is to find out if they needed help in the Eastern Sydney area but couldn’t find it in the Eastern Sydney Area, and to talk about what else would have been helpful.
My journey has been a long one, full of different experiences, all with the aim to change the mental health service and help other consumers have a better recovery journey than I had.
Biography
Lynda has been involved with the Consumer Movement since 1996, and participated in various local, state, and national committees. She has worked as a Consumer Participation Coordinator for the South Eastern Sydney Area Health Service, for 8 years, and is now the Eastern Sydney Partners in Recovery Consumer Consultant. Her other projects are Chairperson of the ARC Group NSW Inc., member of the SUPER GROUP, and CARDRE Network, and a Peerzone Facilitator.
Judith Nicholas
Consumer/Carer
Sharing the Journey of Addictions with a Diagnosis of OCD
Abstract
The presenter will describe her 46 year journey of addictions following a diagnosis in 1969. Her marriage partner also diagnosed with OCD posed a challenge of roller-coaster proportions that dogged the relationship. After 41 years they both found it too difficult to live with each other's problems as well as dealing with their own. The two daughters from the marriage also living with OCD complicated her progress and caused insurmountable issues and problems. The presenter will describe the purpose of each addiction as a crutch which she used to deal with the negative aspects of the family's mental health problems. The presentation will also include unhelpful behavioural problems that arose and interfered with daily life responsibilities and how it stymied relationship growth with her husband and the ability for positive parenting. Strategies for overcoming these negative behaviours were developed over the years and the presenter will share how she has progressed her recovery journey. As a registered nurse in 1963, smoking addiction was followed by coffee, overeating, shopping sprees, acquiring goods at garage sales and council clean-ups which led to hoarding, presenting mammoth challenges Overcoming these challenges have maintained smoother sailing into twilight years and her seventies.
Biography
Judith Nicholas, husband and two daughters have all experienced depression and OCD. Her journey with many addictions have led her to become an advocate in mental health issues using skills knowledge and the experiences acquired. Judith has been a member of the NSW Squaller and Hoarding Taskforce that provided submissions to the NSW Government. She is also a Board member for the Mental Health Carers (ARAFMI), a member of the Ryde Hospital Community Consultative Committee and a carer representative on the Northern Sydney Local Health District Mental Health Clinical Council.
